Comments for My Lyme Disease Blog http://lymeaway.wordpress.com Ticked off about LYME! Sun, 18 Oct 2009 23:21:51 +0000 http://wordpress.com/ hourly 1 Comment on Diagnosis by geraldine http://lymeaway.wordpress.com/diagnosis/#comment-163 geraldine Sun, 18 Oct 2009 23:21:51 +0000 http://lymeaway.wordpress.com/?page_id=95#comment-163 I used ingenix for the lyme a year and half ago after elisa came back negative. Igenix came back positive in igm, but neg in igg.My symptoms have been for 3 years so current doctor was puzzled by that & is re doing the test one half year later. I did have a herpes outbreak when I did the test & wonder if that caused it to come back positive. I don't have fever or swollen joints or flu, but have numb/burn skin, twitches & can't sleep at all without meds which only give me 3-4 hour sleep. So, I'm trying to determine if I have lyme or not. I did 4 months of oral antibiotics, but didn't have a herx, though headache & neck pain diminished. What I'm writing to ask is: can herpes flair give positive results? Also, what tests are used for co-infections? One doctor used Fry, but it had negative results on all blood strains, then on photo it had an arrow pointing to a small dot, saying either a bacteria or bartonella. I don't have most symptoms of bartonella like heel pain or fever, but I do have sleep problem and twitches.... thank you for any input -geraldine I used ingenix for the lyme a year and half ago after elisa came back negative. Igenix came back positive in igm, but neg in igg.My symptoms have been for 3 years so current doctor was puzzled by that & is re doing the test one half year later. I did have a herpes outbreak when I did the test & wonder if that caused it to come back positive.

I don’t have fever or swollen joints or flu, but have numb/burn skin, twitches & can’t sleep at all without meds which only give me 3-4 hour sleep. So, I’m trying to determine if I have lyme or not. I did 4 months of oral antibiotics, but didn’t have a herx, though headache & neck pain diminished.

What I’m writing to ask is: can herpes flair give positive results? Also, what tests are used for co-infections? One doctor used Fry, but it had negative results on all blood strains, then on photo it had an arrow pointing to a small dot, saying either a bacteria or bartonella. I don’t have most symptoms of bartonella like heel pain or fever, but I do have sleep problem and twitches…. thank you for any input -geraldine

]]> Comment on My Story by Michael http://lymeaway.wordpress.com/my-story/#comment-162 Michael Sat, 17 Oct 2009 00:01:12 +0000 http://lymeaway.wordpress.com/?page_id=108#comment-162 I think it's good that you see it in a positive light and that you're reason for this is to spread awareness. I feel like that as well. Thanks for sharing your story. Feel better. I think it’s good that you see it in a positive light and that you’re reason for this is to spread awareness. I feel like that as well.

Thanks for sharing your story. Feel better.

]]> Comment on My April Update on Treatment by Julie http://lymeaway.wordpress.com/2009/04/26/my-april-update-on-treatment/#comment-160 Julie Sun, 04 Oct 2009 18:44:45 +0000 http://lymeaway.wordpress.com/2009/04/26/my-april-update-on-treatment/#comment-160 http://www.hendricksfarmsanddairy.com/Contact.html http://www.hendricksfarmsanddairy.com/Contact.html

]]> Comment on My FACEBOOK Page, come talk to me:) by Paul Ianni http://lymeaway.wordpress.com/2009/09/04/my-facebook-page-come-talk-to-me/#comment-155 Paul Ianni Sat, 05 Sep 2009 07:30:08 +0000 http://lymeaway.wordpress.com/?p=413#comment-155 great blog! Paul, fellow lymie great blog!
Paul, fellow lymie

]]> Comment on Market America beating the recession! by Harry http://lymeaway.wordpress.com/2009/04/28/market-america-beating-the-recession/#comment-152 Harry Tue, 25 Aug 2009 01:10:19 +0000 http://lymeaway.wordpress.com/2009/04/28/market-america-beating-the-recession/#comment-152 Lyme in the news in business world for a natural preventative. http://lymeclr.com/ Lyme Disease Is Now http://news.moneycentral.msn.com/provider/providerarticle.aspx?feed=MW&date=20090824&id=10318250 Stratton buys Lyme CLR STHG CJ Lyme in the news in business world for a natural preventative.

http://lymeclr.com/ Lyme Disease Is Now

http://news.moneycentral.msn.com/provider/providerarticle.aspx?feed=MW&date=20090824&id=10318250 Stratton buys Lyme CLR

STHG

CJ

]]> Comment on Lyme Awareness Month in PA by Lyme Disease http://lymeaway.wordpress.com/2009/05/14/lyme-awareness-month-in-pa/#comment-136 Lyme Disease Thu, 18 Jun 2009 15:30:45 +0000 http://lymeaway.wordpress.com/2009/05/14/lyme-awareness-month-in-pa/#comment-136 We need lyme awareness month twelve months of the year. You would think that when President Bush got lyme, more attention would have been placed on it. Thank goodness for Open Eye Pictures for putting out their film and <a href="http://www.intothelightgala.com" rel="nofollow">Dr.Jemsek</a> for their "Into the Light Gala" presentation. We need lyme awareness month twelve months of the year. You would think that when President Bush got lyme, more attention would have been placed on it. Thank goodness for Open Eye Pictures for putting out their film and Dr.Jemsek for their “Into the Light Gala” presentation.

]]> Comment on Lyme Disease Events in PA by Brent http://lymeaway.wordpress.com/2009/05/06/lyme-disease-events-in-pa/#comment-112 Brent Mon, 11 May 2009 01:06:05 +0000 http://lymeaway.wordpress.com/2009/05/06/lyme-disease-events-in-pa/#comment-112 What time is the May 17th showing in Ambler? Thanks What time is the May 17th showing in Ambler?
Thanks

]]> Comment on Turn The Corner Foundation- The Fight against Lyme Disease by Diane Clohesy http://lymeaway.wordpress.com/2009/01/24/turn-the-corner-foundation-the-fight-against-lyme-disease/#comment-108 Diane Clohesy Wed, 06 May 2009 19:27:23 +0000 http://lymeaway.wordpress.com/2009/01/24/turn-the-corner-foundation-the-fight-against-lyme-disease/#comment-108 Great Video! Great Video!

]]> Comment on My Story by Barbie http://lymeaway.wordpress.com/my-story/#comment-86 Barbie Thu, 02 Apr 2009 23:59:30 +0000 http://lymeaway.wordpress.com/?page_id=108#comment-86 Dear Ali, thank you for taking the time to share your story. Many folks will see themselves in it. Thankfully I received treatment by the best LLMD in the country on TBD Co-infections. if they go untreated, you can have all the IV you want (I never did any) and will never get better. Bartonella(s) and babesia - several forms are by far more deadly and harder to treat. I would offer you visit the site I listed and read some of the posted articles for free. Until you successfully treat those co-infections, you will continue I suspect to have relapse. here's the good news.. am older than you... was bit at least 2x that I know of, went on to get married and have two successful pregnancies and children. They are alive and healthy - but unfortunately both got lyme living in none other than PA! Thankfully they too are functional having received adequate testing and treatment -- after seeing DOZENS of doctors in PA who didn't know what the heck they were doing and ignored what I now know to have been a positive WB on one child. I would still love to have a good sit down with THAT doctor who was so ignorant in Chester County, PA. Keep at it. If you quit you lose. It is worth the fight. Barbie Dear Ali,
thank you for taking the time to share your story. Many folks will see themselves in it. Thankfully I received treatment by the best LLMD in the country on TBD Co-infections. if they go untreated, you can have all the IV you want (I never did any) and will never get better. Bartonella(s) and babesia – several forms are by far more deadly and harder to treat. I would offer you visit the site I listed and read some of the posted articles for free. Until you successfully treat those co-infections, you will continue I suspect to have relapse.

here’s the good news.. am older than you… was bit at least 2x that I know of, went on to get married and have two successful pregnancies and children. They are alive and healthy – but unfortunately both got lyme living in none other than PA! Thankfully they too are functional having received adequate testing and treatment — after seeing DOZENS of doctors in PA who didn’t know what the heck they were doing and ignored what I now know to have been a positive WB on one child. I would still love to have a good sit down with THAT doctor who was so ignorant in Chester County, PA.

Keep at it. If you quit you lose. It is worth the fight.
Barbie

]]> Comment on My Story by Erica http://lymeaway.wordpress.com/my-story/#comment-85 Erica Thu, 02 Apr 2009 21:03:53 +0000 http://lymeaway.wordpress.com/?page_id=108#comment-85 Hi Ali, Please email me, I would really like to talk to you, I am having the same problem, except in Sept (I am 26 right now), an ER said I had Lyme finally then it came up negative, I also had Rocky Mountain Spotted come up in my blood tests, drastic weight loss, deficiencies in all of these things in my blood, and its getting so frustrating, I have been diagnosed with so much stuff starting a little over ten years ago, I go numb, slurred speech, I would like to speak with you more, I need to find a dr willing to "go to the distance" so to speak to fight this. They have misdiagnosed so much... If my email isnt published on here I will check back and see can you put your email if not. Thank you! Hi Ali,

Please email me, I would really like to talk to you, I am having the same problem, except in Sept (I am 26 right now), an ER said I had Lyme finally then it came up negative, I also had Rocky Mountain Spotted come up in my blood tests, drastic weight loss, deficiencies in all of these things in my blood, and its getting so frustrating, I have been diagnosed with so much stuff starting a little over ten years ago, I go numb, slurred speech, I would like to speak with you more, I need to find a dr willing to “go to the distance” so to speak to fight this. They have misdiagnosed so much… If my email isnt published on here I will check back and see can you put your email if not. Thank you!

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