Come out for our 2012 Lyme Light Fashion Show on May 5th!

Come out on May 5th 2012 for a Fashion Show centered around Lyme Disease. Hosted by Montgomery County Community College. Fashioned by Youth affected by Lyme Disease, come hear their stories.Lyme Disease is not what you think!
See designs by Tommy Hilfiger’s daughter Alexandria Hilfiger, Old Navy, Bannana Republic and many more.

All proceeds will go towards MontCoLyme

A Human Pandemic

“Without a full-scale investigation by the Justice Department, or a voluntary admission from the government that they accidentally released the bacteria that started Lyme disease in 1975, the world may unfortunately never know what really happened.”

Lyme Disease a Human Pandemic

House Bill 272 Hearing coming up!! Lymies needed- 8/30/2011

We are asking all of you who have Lyme and reside in Pennsylvania to be the voice so that we can finally get HB 272 passed!! If you can not make it you can still email your story or send written testimony to be heard. Check for details at Lyme Action PA Thank you!!

(Via Julia F. Wagner-President of MontCoLyme Support Group)

The PA House is going to hold a hearing on House bill 272 on Tuesday, Aug 30th, in Harrisburg from 10am until 12 noon. We hope you can be there!

There is new energy on this bill, and this hearing is critical–the bill has been around the house so long, and passed 3 times. Thats why it is crucial to hear your stories! Dr. Robert Bransfield, ILADS president, and distinguised fellow of the APA, and President of APA New Jersey will be speaking. We have several surprise speakers as well and patients speaking with their own stories and will be asking for an open mike for patients to share comments at the end.

Please, please do what you can to pass the word on regarding this hearing if you can not attend. Check Lyme Action PA and our facebook page for updates over the next couple days.

Thank you…progress IS being made to so many of you who are reaching out, finding the patients, getting them involved, please keep in touch, and let us know you are out there, and in the fight to change things for Lyme patients in PA!!

Julia Wagner, Chair, LymeActionPA

**If you want to get more actively involved, email lymeactionpa@gmail.com and we’ll connect you with your local regional LymeActionPA coalition leader.

****HB 272 Bill is The Lyme and Related Tick-Borne Disease Education, Prevention and Treatment Act.

This legislation directs the Department of Health to establish a task force to address the issues surrounding Lyme disease and other tick borne infections. The task force is directed to investigate and make recommendations to the Department regarding the prevention of Lyme disease in the Commonwealth. The Department of Health is also directed to develop a program of public and professional education on Lyme disease in order to raise awareness of the long term effects of misdiagnoses and to develop public information and education on Lyme disease.

In addition, HB 272 further provides that a physician may prescribe long-term antibiotic therapy for late stage Lyme disease. The bill requires all health care insurance policies must cover treatment for Lyme disease, including long term therapies, when prescribed by the treating physician.

Harrisburg Lyme Rally-Only 2 days away!!

Were getting closer! Only 2 days away from the Harrisburg Lyme Rally!!! We need you, the LYME YOUTH, YOUNG ADULTS, and their families to show your support for the Senate Bill 210. Wear your green! Bring your signs! There will be PRESS there and we need to see and hear the stories of our youth and how it’s impacting them. Our goal is to explain why this bill is needed so desperately. Check out LymeActionPA for the latest updates for Tuesday-5/24.

-Did you know Pennsylvania is #1 in reported cases in the U.S. and yet we have no prevention strategy, and were not even monitoring tick populations?

-Children are the most likely victims, ages 5-14 in particular. The impact on the brains and development of children can be very severe but can be improved if treated properly.

-Long term antibiotics work! They restore health and functionality. The cost of not treating us is much more significant then the potential risks of treatment.

– CDC says Lyme is a clinical diagnoses–based on signs and symptoms NOT the lab test alone. The lab test is widely known to be inadequate and a John’s Hopkins study from 2005,found it could miss as many as 75% of people who actually had the disease! A negative test can not rule out the disease, and yet physicians today are diagnosing based on “the old school” approach requiring a positive test no matter what.

“Under Our Skin” Viewing-4/18/11

LYME DISEASE

Special Screening of the Award-winning documentary film

UNDER OUR SKIN

A gripping tale of microbes, medicine and money. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are “all in your head”

HOSTED BY PENNSYLVANIA STATE SENATOR

ANDY DINNIMAN

and the

PENNSYLVANIA LYME DISEASE AWARENESS COMMITTEE

WEST CHESTER UNIVERSITY, SYKES STUDEN UNION, 110 ROSEDALE AVENUE, WEST CHESTER, PA

(FREE and Open to all-Free Parking)

MONDAY, APRIL 18, 2011 @7:00PM

Pennsylvania has the highest number of Lyme cases in the U.S.

Q&A after the movie: DOUG FEARN, President, Lyme Disease Association of Southeastern Pennsylvania, Inc.

For info, phone 610-384-2249

www.lymepa.org

 

Dont Forget!! UOS Screening on 1/30 @4pm

The Colonial Theater, Phoenixville, PA

Image via Wikipedia

If you have nothing to do tomorrow and want to see a great film come out to the Colonial Theatre and see the gripping documentary ”Under Our Skin”. I got invited to be a guest speaker, come out and meet me!

Hope to see you there!

Check it out!!

Live Broadcast of SB 1199-Lyme Disease for Pennsylvania

To see the live broadcast of the the SB 1199 Hearing that I attended, and was also a subject in (Perch Family), click on this link and scroll down to June 22, 2010- SB 1199 Public Hearing, Lyme Disease. There is a video link or audio link you can click on. Julia Wagner is the speaker of the MontCo Lyme Support Group, thanks to her hard work and Senator Greenleaf we are moving along with this bill!

http://www.senatordonwhite.com

LEGISLATIVE UPDATE AND CALL TO ACTION!!! AN IMPORTANT MESSAGE FROM JULIA WAGNER, Chair, Lyme Action PA

 

Thank you to all that attended the June 22 Senate Public Hearing on SB#1199. The hearing had significant impact and got this issue on the table effectively — YOU DID IT! The PA Legislature is on break and returns in September. In the meantime: Senater Greenleaf has followed up with the committee, gotten a positive response, and there are some activities happening over the summer to keep moving this forward. And, in the meantime, Massachussets successfully passed their Lyme bill (doctor’s protection)!! 

There are exactly 3 weeks in Session – 9/20, 9/27 and 10/12 – for this bill to move since this is an election year. There is a chance we’ll get somewhere, but this will require everything to happen very quickly and smoothly — WE NEED YOU TO CONTACT YOUR SENATORS — AND IF YOU HEAR “THERE IS NO BUDGET” – TELL THEM MANY ASPECTS OF THE BILL DO NOT REQUIRE BUDGET, AND THEY CAN PASS IT PENDING FUNDING. Most importantly, we have also been working with

Rep. Merle Phillips who successfully got the House Bill HB#894 through appropriations committee in June, the day after our hearing! The house bill WILL be up for a VOTE immediately in September. This bill has passed 3 times before, only to get passed over to the Senate where it went nowhere. So — this time, if it passes, the Senate committee is in a very different place — they have considered SB#1199 and heard from YOU! CONTACT YOUR REPRESENTATIVE TO VOTE YES!! We have two shots at this – through the Senate and the House – put the pressure on! If you have not already done so, sign up at http://www.lymeactionpa.com to the mailing list for more updates, and to sign the on-line petition – we want 1,000+! NOT GOING AWAY!

And, if you didn’t get to the hearing, you can see it via video link in full at http://www.lymeactionpa.com or http://www.senatordonwhite.com/ – scroll down to the June 22 hearing link.

Keep up the momentum – keep calling… and send them articles, your stories. They need to know this is NOT GOING AWAY!

Thank you – Julia Wagner, Chair, LymeActionPA, http://www.lymeactionpa.com

 

Pubilic Hearing, PA SB 1199, 6/22/10- Come out and Support!!

PUBLIC HEARING to support PA SB 1199 has been SCHEDULED IN HARRISBURG:

DATE: JUNE 22

TIME: 10:00 a.m. – 12:00 p.m.

Please arrive a half hour early at the LATEST due to seating restrictions.

RSVP to montcolyme@aol.com so that we can judge the size of the room needed.  Please do so ASAP.

Interested in CAR POOLING from Plymouth Meeting Mall in Plymouth Meeting PA (located near routes 476 and 276)?   Email montcolyme@aol.com

Specific Address, Room Location, Etc for the hearing will be updated here as soon as we have the information.

Background on the bill:

PA Senate Bill 1199 SEEKS TO:

  1. establish a task force in PA on Lyme Disease and related maladies;
  2. provide powers for Department of Health and Department of Conservation and Natural Resources, and the PA Game Commission to execute prevention and education strategies; and
  3. ensure patient access to appropriate care and treatment.

PA SB 1199

What YOU can do NOW?  Go to Lyme Action PA  Sign the PETITION! Petition for Senate Bill 1199

May 2nd FREE Under Our Skin Screening-Sellersville, PA

We will be having another Under Our Skin Screening on May 2nd,  Sellersville Theatre @6:30pm

Please come and support the film and invite others as well!!!!

A gripping tale of microbes, medicine & money UNDER OUR SKIN exposes the hidden story of Lyme disease, one of the most controversial and fastest growing epidemics of our time. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are “all in their head.” Following the stories of patients and physicians fighting for their lives and livelihoods, the film brings into focus a haunting picture of the health care system and a medical establishment all too willing to put profits ahead of patients.


Under Our Skin-Sellersville Theatre