Save The Date! PA Patient Conference

I’m happy to announce after some time of discussion and planning, the PA Lyme Disease Resource Network will be having their first Annual Lyme Disease Patient Conference this May 14th 2016 in Lancaster, PA.

This is wonderful news for Lyme Patients everywhere! You can find future details on the PA LYME DISEASE NETWORK  Website and also look for more announcements on my Blog, Facebook Pages for LymeAWAY and LymieMoms Unite, as well my Twitter accounts @Lymeaway77 and @LymieMoms

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January LymieMoms Social-1/24/16

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LymieMoms Social Group  had taken a hiatus the last several months, but we are back now to our meetings starting up again. I do hope you all had a happy and hopefully not too painful Holiday and were able to enjoy your time with your family and friends. My family and I were very busy running from one family party to the next, church service, and of course having family of our own over the holiday as well and celebrating the New Year too. Least to say as nice as it was this year, I’m glad its over. I’m exhausted and ready to get back to some normalcy and could definitely use my Ladies time with some of you beautiful Mamas!

Our newest meeting coming up will be on Sunday January 24, 2016 from 1:00-4:00pm at the Panera Bread in Quakertown, PA. If you have a Facebook page you can find updates here LymieMoms January Social These meetings are open to Mother’s who have Lyme, Mother’s whose children have Lyme Disease or newly diagnosed, those interested in learning more and speaking with others who have been through Pregnancy and Lyme Disease or want to start a family.  I understand myself because back in 2010 when my Husband and I talked about starting a family it was a tough choice and I found that the friendship and advice as well as hearing experiences from other Lyme Parents out there helped me to make a decision for us. Plus making new friends for me has been the bonus 🙂 As of now Children are not allowed to join our meetings only because our full attention will be on them, I apologize but come the warmer months I promise to have several events so that our kids may join in and meet each other.

A note as well…I currently am looking for LymeMom Social Leaders for your town and county. Sadly I can’t be everywhere each month and as of now I’ve only been able to have meetings in PA, my goal is in surrounding areas as well such as Delaware and New Jersey. If only there were two of me! Its not a huge responsibility so if you have any interest please contact me at Lymeaway77@gmail.com

Well, I hope to see some new faces at this meeting this month! Also, if there is snow that day please look for updates either on our Facebook Page LymieMoms Social Group or look here on my Blog for updates.

~Alison

Come out to our October LymieMoms Social Event! 10/11/15

1888484_10152390923879155_2053769405_n(1) As I’ve mentioned before on other posts. I started an online Support Group for Mom’s with Lyme Disease called Lymie Moms Unite, who’s kids are suffering from it, as well as for those who are pregnant or looking to start a family and in need of support and friendship. Many of the Mothers in my online Facebook group are young Mother’s who have sick kids and looking for answers and support. Others are there for information. We also have Veteran Lymie Moms who are there to help those who are now going though their own journey. Its amazing some of the friendships these women have made with each other already and even myself have. Im very big on a drama free and luckily we’ve never had that either. I’ve heard from some of the Moms telling me they feel safe in this group, which was the approach I wanted when I started this. A no judgement group where Mom’s can vent if needed, come together and also support one another without bashing one another for their own choices in their journey to have a family and the kind of treatment they do. I want to make it clear too because I’ve had others ask. This group is not just for the young Mother’s out there. We welcome Mother’s with grown children as well as Grandmother’s who may have a grandchild who as sick as well.

Recently, this past summer, I had an idea to get local Mom’s together each month, or every other to meet in person. That idea turned into the LymieMoms Social Group of PA/NJ/DE. We had our first meeting with 4 of us there at a Panera Bread in Montgomery County, PA. It turned out wonderful, we had lunch, shared our stories and advice with each other. I realized soon it very much something that was needed and was happy that I started it. The plan is to change locations every time which is what I’ve been doing so far and its turned out great! I only wish I could travel to each state and county meeting more Mother’s out there, but sadly I am unable to do that I am only one person and have a family of my own. My great hope is that we can do this wherever the Social part of LymieMoms is needed. Therefore I’m asking if any of you are interested in being a LymieMoms Host in your State and County please let me know by emailing me at lymeaway77@gmail.com The volunteer job does not come with a huge responsibility. You would just have to pick a place each month or every other to have lunch, dinner, or coffee then invite people. The key is to get together without spending too much money. There is no money that you have to put up front. Its just a matter of making a commitment to keep the group going. I also doing mind helping out with the invites if  needed through social media.

I do hope to see some of you local Ladies, Moms, soon to be, etc. in the PA area at our next meeting which is this Sunday, October 11th @1-3:30pm at the Wegmans Pub in King Of Prussia, PA. Please RSVP at the link below on Facebook and I hope to see you there!

Alison

LymieMoms Social Club of PA/NJ/DE (Link to Group)

OCTOBER LymieMoms Social Event 10/11/15 (RSVP Here)

Follow Us Here! LymieMomsUnite Instagram

Lymie Moms Unite (Facebook Online Support)

Come out for our 2012 Lyme Light Fashion Show May 5th!

Come out on May 5th 2012 for a Fashion Show centered around Lyme Disease in Youth! Hosted by Montgomery County Community College. Modeled by Youth affected by Lyme Disease and also professional models. Come hear the stories of these kids and  how much it has changed their lives. Lyme Disease is not what you think!!

See Designs by Tommy Hilfiger‘s daughter Alexandria Hilfiger, Old Navy, Bannana Republic and many more!

All proceeds will go towards MontCoLyme a 501 (c)(3) Organization

Lyme Light Fashion Show

Lyme Light Fashion Show 2012-Megan Harrison’s Story

Come out for our 2012 Lyme Light Fashion Show on May 5th!

Come out on May 5th 2012 for a Fashion Show centered around Lyme Disease. Hosted by Montgomery County Community College. Fashioned by Youth affected by Lyme Disease, come hear their stories.Lyme Disease is not what you think!
See designs by Tommy Hilfiger’s daughter Alexandria Hilfiger, Old Navy, Bannana Republic and many more.

All proceeds will go towards MontCoLyme

House Bill 272 Hearing coming up!! Lymies needed- 8/30/2011

We are asking all of you who have Lyme and reside in Pennsylvania to be the voice so that we can finally get HB 272 passed!! If you can not make it you can still email your story or send written testimony to be heard. Check for details at Lyme Action PA Thank you!!

(Via Julia F. Wagner-President of MontCoLyme Support Group)

The PA House is going to hold a hearing on House bill 272 on Tuesday, Aug 30th, in Harrisburg from 10am until 12 noon. We hope you can be there!

There is new energy on this bill, and this hearing is critical–the bill has been around the house so long, and passed 3 times. Thats why it is crucial to hear your stories! Dr. Robert Bransfield, ILADS president, and distinguised fellow of the APA, and President of APA New Jersey will be speaking. We have several surprise speakers as well and patients speaking with their own stories and will be asking for an open mike for patients to share comments at the end.

Please, please do what you can to pass the word on regarding this hearing if you can not attend. Check Lyme Action PA and our facebook page for updates over the next couple days.

Thank you…progress IS being made to so many of you who are reaching out, finding the patients, getting them involved, please keep in touch, and let us know you are out there, and in the fight to change things for Lyme patients in PA!!

Julia Wagner, Chair, LymeActionPA

**If you want to get more actively involved, email lymeactionpa@gmail.com and we’ll connect you with your local regional LymeActionPA coalition leader.

****HB 272 Bill is The Lyme and Related Tick-Borne Disease Education, Prevention and Treatment Act.

This legislation directs the Department of Health to establish a task force to address the issues surrounding Lyme disease and other tick borne infections. The task force is directed to investigate and make recommendations to the Department regarding the prevention of Lyme disease in the Commonwealth. The Department of Health is also directed to develop a program of public and professional education on Lyme disease in order to raise awareness of the long term effects of misdiagnoses and to develop public information and education on Lyme disease.

In addition, HB 272 further provides that a physician may prescribe long-term antibiotic therapy for late stage Lyme disease. The bill requires all health care insurance policies must cover treatment for Lyme disease, including long term therapies, when prescribed by the treating physician.

Lyme Lite Fashion Show-6/11/11

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Jefferson University Hospital Alumni Hall
1020 Locust Street
Philadelphia, PA

Silent Auction and Raffle
Starts 4:30-6:30pm, Doors open @4:00 for silent auction

Benefiting Montgomery County Lyme Information and Support Group (MontCoLyme) A non-profit organization that supports Lyme Disease education & awareness efforts in Montgomery and surrounding counties

Fun for the Whole Family!!
Snacks-Music-Lots of Raffle Prizes

Featuring Fabulous Fashions from: Banana Republic, REI, Eddie Bauer, Old Navy, Coldwater Creek, NTDTV Chinese costumes from the Global Han Couture design competition, Norma Kamali’s line of clothing from Walmart

Walking the Catwalk: Models from the John Robert Powers Agency & Youth Affected by Lyme Disease

EMCEE: Tara Murtha, Philadelphia Weekly, Investigative Reporter

CHIEF SPONSOR:
Jefferson-Myrna Brind Center of Integrative Medicine

***For ticket and parking info, contact (888) 661-LYME or montcolyme@aol.com

**Advance tickets can be purchased at Lyme Lite Show