Come out to our October LymieMoms Social Event! 10/11/15

1888484_10152390923879155_2053769405_n(1) As I’ve mentioned before on other posts. I started an online Support Group for Mom’s with Lyme Disease called Lymie Moms Unite, who’s kids are suffering from it, as well as for those who are pregnant or looking to start a family and in need of support and friendship. Many of the Mothers in my online Facebook group are young Mother’s who have sick kids and looking for answers and support. Others are there for information. We also have Veteran Lymie Moms who are there to help those who are now going though their own journey. Its amazing some of the friendships these women have made with each other already and even myself have. Im very big on a drama free and luckily we’ve never had that either. I’ve heard from some of the Moms telling me they feel safe in this group, which was the approach I wanted when I started this. A no judgement group where Mom’s can vent if needed, come together and also support one another without bashing one another for their own choices in their journey to have a family and the kind of treatment they do. I want to make it clear too because I’ve had others ask. This group is not just for the young Mother’s out there. We welcome Mother’s with grown children as well as Grandmother’s who may have a grandchild who as sick as well.

Recently, this past summer, I had an idea to get local Mom’s together each month, or every other to meet in person. That idea turned into the LymieMoms Social Group of PA/NJ/DE. We had our first meeting with 4 of us there at a Panera Bread in Montgomery County, PA. It turned out wonderful, we had lunch, shared our stories and advice with each other. I realized soon it very much something that was needed and was happy that I started it. The plan is to change locations every time which is what I’ve been doing so far and its turned out great! I only wish I could travel to each state and county meeting more Mother’s out there, but sadly I am unable to do that I am only one person and have a family of my own. My great hope is that we can do this wherever the Social part of LymieMoms is needed. Therefore I’m asking if any of you are interested in being a LymieMoms Host in your State and County please let me know by emailing me at lymeaway77@gmail.com The volunteer job does not come with a huge responsibility. You would just have to pick a place each month or every other to have lunch, dinner, or coffee then invite people. The key is to get together without spending too much money. There is no money that you have to put up front. Its just a matter of making a commitment to keep the group going. I also doing mind helping out with the invites if  needed through social media.

I do hope to see some of you local Ladies, Moms, soon to be, etc. in the PA area at our next meeting which is this Sunday, October 11th @1-3:30pm at the Wegmans Pub in King Of Prussia, PA. Please RSVP at the link below on Facebook and I hope to see you there!

Alison

LymieMoms Social Club of PA/NJ/DE (Link to Group)

OCTOBER LymieMoms Social Event 10/11/15 (RSVP Here)

Follow Us Here! LymieMomsUnite Instagram

Lymie Moms Unite (Facebook Online Support)

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Tick Prevention! Please read and share to protect yourself and loved ones during Tick season!

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I’ve already received 4 messages from people just in this last week regarding Tick bites. PLEASE, PLEASE remember right now the nymph (babies) ticks are out!! So when you are outside whether you are hiking, playing in the yard, gardening, camping or even at a local park do a tick check when you come home. Here are some tips I would suggest too…these are cheap products that can help.

1. Wear some kind of hat
2. Wear light colored clothing so that you can see the ticks
3. Cover any or all exposed areas such as your ankles, arms, & legs. Ticks love the warmer spots like your Ears, armpits, groin, etc. I know it can be hot to wear long clothes in the spring/summer so if you prefer there are products that help protect from ticks such as…

A. Permethrin Spray, this is good through 6 washes of clothing-http://www.walmart.com/ip/21947774?wmlspartner=wlpa&selectedSellerId=0&adid=22222222227022234839&wl0=&wl1=g&wl2=c&wl3=40968437432&wl4=&wl5=pla&wl6=78911591192&veh=sem

B. Spray with DEET to apply to the skin- http://www.amazon.com/Deep-Woods-Sportsman-Insect-Repellent/dp/B000WOU414

C. Natural spray is also good for kids and if you don’t want the chemicals on your skin is- Repel Insect Spray

D. For your lawn there are many different things you can do. Remember ticks love the to hang by the edges of your yard and walking paths. They HATE the Sun but LOVE the shade so putting things like your kids swing set in the shade isn’t the best idea. Here are a few products to help- http://www.tickencounter.org/prevention/protect_your_yard

E. Don’t forget about your pets! Use a pet product on them to help prevent ticks as well. Remember to check them when they come inside and one of the best things I can tell you as well. Do not allow them to sleep in bed with you at night. I’ve had many people with stories of ticks transferring from their pets onto them- http://www.1800petmeds.com/Flea+++Tick+Prevention-cat50.html

F. When Hunting there is a Tick prevention suit and clothing you can wear. In fact my Father In-law uses one and says it works great!- http://www.cabelas.com/catalog/search.cmd?form_state=searchForm&N=0&fsch=true&Ntk=AllProducts&Ntt=Tick+prevention+clothes&x=10&y=6&WTz_l=Header%3BSearch-All+Products

Reputable Lyme Disease Info-

http://www.ilads.org
http://www.lymedisease.org/lyme101/ticks/about_ticks.html

Have a fun this Spring/Summer but please be safe! Share this post and if any questions feel free to contact me 

~Alison

House Bill 272 Hearing coming up!! Lymies needed- 8/30/2011

We are asking all of you who have Lyme and reside in Pennsylvania to be the voice so that we can finally get HB 272 passed!! If you can not make it you can still email your story or send written testimony to be heard. Check for details at Lyme Action PA Thank you!!

(Via Julia F. Wagner-President of MontCoLyme Support Group)

The PA House is going to hold a hearing on House bill 272 on Tuesday, Aug 30th, in Harrisburg from 10am until 12 noon. We hope you can be there!

There is new energy on this bill, and this hearing is critical–the bill has been around the house so long, and passed 3 times. Thats why it is crucial to hear your stories! Dr. Robert Bransfield, ILADS president, and distinguised fellow of the APA, and President of APA New Jersey will be speaking. We have several surprise speakers as well and patients speaking with their own stories and will be asking for an open mike for patients to share comments at the end.

Please, please do what you can to pass the word on regarding this hearing if you can not attend. Check Lyme Action PA and our facebook page for updates over the next couple days.

Thank you…progress IS being made to so many of you who are reaching out, finding the patients, getting them involved, please keep in touch, and let us know you are out there, and in the fight to change things for Lyme patients in PA!!

Julia Wagner, Chair, LymeActionPA

**If you want to get more actively involved, email lymeactionpa@gmail.com and we’ll connect you with your local regional LymeActionPA coalition leader.

****HB 272 Bill is The Lyme and Related Tick-Borne Disease Education, Prevention and Treatment Act.

This legislation directs the Department of Health to establish a task force to address the issues surrounding Lyme disease and other tick borne infections. The task force is directed to investigate and make recommendations to the Department regarding the prevention of Lyme disease in the Commonwealth. The Department of Health is also directed to develop a program of public and professional education on Lyme disease in order to raise awareness of the long term effects of misdiagnoses and to develop public information and education on Lyme disease.

In addition, HB 272 further provides that a physician may prescribe long-term antibiotic therapy for late stage Lyme disease. The bill requires all health care insurance policies must cover treatment for Lyme disease, including long term therapies, when prescribed by the treating physician.

Pubilic Hearing, PA SB 1199, 6/22/10- Come out and Support!!

PUBLIC HEARING to support PA SB 1199 has been SCHEDULED IN HARRISBURG:

DATE: JUNE 22

TIME: 10:00 a.m. – 12:00 p.m.

Please arrive a half hour early at the LATEST due to seating restrictions.

RSVP to montcolyme@aol.com so that we can judge the size of the room needed.  Please do so ASAP.

Interested in CAR POOLING from Plymouth Meeting Mall in Plymouth Meeting PA (located near routes 476 and 276)?   Email montcolyme@aol.com

Specific Address, Room Location, Etc for the hearing will be updated here as soon as we have the information.

Background on the bill:

PA Senate Bill 1199 SEEKS TO:

  1. establish a task force in PA on Lyme Disease and related maladies;
  2. provide powers for Department of Health and Department of Conservation and Natural Resources, and the PA Game Commission to execute prevention and education strategies; and
  3. ensure patient access to appropriate care and treatment.

PA SB 1199

What YOU can do NOW?  Go to Lyme Action PA  Sign the PETITION! Petition for Senate Bill 1199

News Article on LYME RALLY in NJ *FRANK PALLONE*

My mom and I were supposed to be there for this rally that day but I was having a real bad week with my IV-Treatment and 2 hrs from my home. Some of my fellow Lyme Friends are in the pictures. This Bill must be passed, or my doctor is out of a job just like the other Lyme Doctors fighting for our rights and IV Treatment that we need! frank Pallone MUST LISTEN!!