Lyme Panel Discussion- 7/27/15 @7pm North Wales, PA 

 

I will be a guest speaker again along with several other Lyme speakers talking about my journey and my Daughter’s with Lyme Disease tonight in North Wales, PA. Come out and listen to what others have done for treatment, what has worked what hasn’t and learn more to help you through your own experience with this illness! Hope to see you there. 
This is the info and link to this local Support Group run by Lee Gordon https://www.facebook.com/groups/PALRNMontgomeryCounty/

My Lyme Interview this Mother’s Day! 5/10/15 

  I’m Not Superwoman, but I’m Fighting Lyme Disease, So Close Enough” 

This Sunday, on Mother’s Day 2015, in early morning after 8am. I’ll be sharing my 30 year battle with Lyme Disease on Fox 29 Philly News and with so many other Lyme Patients out there who are fighting this. I feel so honored to have this voice to help those who may not know what is wrong with their children or their own health. My parents were not so lucky. They fought hard for 15 years to find out what was wrong with me, shut down by Doctor after Doctor and fighting with my Teachers and Schools too. 

I hope to inspire other Mom’s out there to never give up no matter how many times you may fall down. I am still fighting the battle and have come pretty far. With two relapses since March 2004 due to a number of things I was unable to prevent. I even had to deal with the diagnosis of my beautiful 3 year old daughter at just 14 weeks old in February 2012, born via Surrogate. I’ll be sharing her story too as well as talking about the projects I’ve worked on since for Mom’s out there to get the support they need. 

I was dealt this hand at a young age, but have truly believed after getting through some very dark times that this is the reason I was chosen this path. Yes, I could of went to college, had a job and maybe even a dancing career like I always dreamed of. However, if I did I probably wouldn’t of met the love of my life. Had a sensitivity towards others, a passion for living life to the fullest, or been given so many blessings and met so many other beautiful Lyme Warriors along the way. I know compared to many “Healthy” people, to never take a good day for granted. That doing things like being able to cook dinner for my family, go to the grocery store and run errands, give my daughter a bath or play outside with her means so much because to a Mom with Lyme those days are far and few between.

I’m so appreciative of everything God has given to me. Especially my family! They have sacrificed so much and have been effected emotionally and financially due to my illness. I hope on Sunday I can give more Parents out there hope and those just diagnosed to keep fighting and never give up! One day we’ll get the respect this illness so rightfully deserves from Doctors, the IDSA, and others. It’s getting better…I can feel it and see it everywhere around me. I pray it continues even if it’s one step at a time.    

Me speaking at the Capitol for the Lyme Bill, my Wonderful and Supportive Parent’s John & Roxanne and my Daughter Hannah as a baby

(left to right) Protesting with my Sister Jessica, myself, friend Dawn and fellow Lyme Warrior Morgan. 

My Husband Brian and Daughter Hannah Marie❤️

Tick Prevention! Please read and share to protect yourself and loved ones during Tick season!

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I’ve already received 4 messages from people just in this last week regarding Tick bites. PLEASE, PLEASE remember right now the nymph (babies) ticks are out!! So when you are outside whether you are hiking, playing in the yard, gardening, camping or even at a local park do a tick check when you come home. Here are some tips I would suggest too…these are cheap products that can help.

1. Wear some kind of hat
2. Wear light colored clothing so that you can see the ticks
3. Cover any or all exposed areas such as your ankles, arms, & legs. Ticks love the warmer spots like your Ears, armpits, groin, etc. I know it can be hot to wear long clothes in the spring/summer so if you prefer there are products that help protect from ticks such as…

A. Permethrin Spray, this is good through 6 washes of clothing-http://www.walmart.com/ip/21947774?wmlspartner=wlpa&selectedSellerId=0&adid=22222222227022234839&wl0=&wl1=g&wl2=c&wl3=40968437432&wl4=&wl5=pla&wl6=78911591192&veh=sem

B. Spray with DEET to apply to the skin- http://www.amazon.com/Deep-Woods-Sportsman-Insect-Repellent/dp/B000WOU414

C. Natural spray is also good for kids and if you don’t want the chemicals on your skin is- Repel Insect Spray

D. For your lawn there are many different things you can do. Remember ticks love the to hang by the edges of your yard and walking paths. They HATE the Sun but LOVE the shade so putting things like your kids swing set in the shade isn’t the best idea. Here are a few products to help- http://www.tickencounter.org/prevention/protect_your_yard

E. Don’t forget about your pets! Use a pet product on them to help prevent ticks as well. Remember to check them when they come inside and one of the best things I can tell you as well. Do not allow them to sleep in bed with you at night. I’ve had many people with stories of ticks transferring from their pets onto them- http://www.1800petmeds.com/Flea+++Tick+Prevention-cat50.html

F. When Hunting there is a Tick prevention suit and clothing you can wear. In fact my Father In-law uses one and says it works great!- http://www.cabelas.com/catalog/search.cmd?form_state=searchForm&N=0&fsch=true&Ntk=AllProducts&Ntt=Tick+prevention+clothes&x=10&y=6&WTz_l=Header%3BSearch-All+Products

Reputable Lyme Disease Info-

http://www.ilads.org
http://www.lymedisease.org/lyme101/ticks/about_ticks.html

Have a fun this Spring/Summer but please be safe! Share this post and if any questions feel free to contact me 

~Alison

CNN 7/7/08 Lyme Disease Coverage!

10yrs of Pain Mandy Hughes

10yrs of Pain Mandy Hughes

JULY 7, 2008

For more than 10 years, Mandy Hughes drifted in an out of what she calls the horrible, debilitating pain of Lyme disease

“It literally feels like you got into a severe accident, like you were hit by a Mack truck and you were allowed no medical attention,” she says.

After being bitten by a tick at 19, Hughes broke out in hives and suffered fever and chills so severe that she had to be hospitalized. She was diagnosed with Lyme disease and was sent home with two weeks’ worth of the antibiotic tetracycline. She seemed to be cured.

But over the years, the Lyme symptoms flared back — crippling joint pain, muscle spasms, headaches and facial paralysis. She visited 15 doctors, yet they were unable to arrive at a diagnosis. Several thought she had multiple sclerosis. Others knew she was sick but didn’t know why. Lyme had been ruled out.

“Maybe it’s psychological — we don’t really have an explanation,” they told Hughes. “Your tests are coming back fine, Mandy.” 

For the rest of this story click on link below (where it says Filed Under)