LymieMoms August Social Event 

 ***THIS EVENT IS CANCELED***

See Blog Post: August LymieMom Meeting Canceled 

 Come this Sunday, August 23rd @1pm in King Of Prussia, PA at the Wegman’s Pub. I will be hosting our 3rd Event for my Lymie Moms Unite Group that is on Facebook. I started the main group shortly after my Daughter got diagnosed with Lyme Disease at just 14 weeks old. This Summer I decided to expand it into a Social atmosphere for Moms to get together, build friendships, and support one another as well as share their experiences on what it’s like to not only deal with a Chronic Illness like this themselves, but raise a child who is suffering as well. I also found I had many others Mother’s contacting me about starting a family after they heard about our Surrogacy Journey in 2011 which created our now 3 yr old Daughter Hannah. 

The Group has become a wonderful outlet for Mother’s looking for support as well as those wanting to start a family while still in treatment for Chronic Lyme Disease or just regaining remission. 

My Group is open to any Mother’s battling the illness, children whom have it, those wanting to start a family and are already pregnant and looking for advice. This group has not only been a learning experience for myself, but I’ve made many wonderful friendships with other Mom Warriors. I do hope to see some of you in the Group as well as at our upcoming Social Events! 

As of now our meetings are being held at a different location each month in the Surrounding Pennsylvania, New Jersey, and Delaware Areas. I am looking to expand into other counties and states though. If you have any interest in becoming a Lymie Mom Host in your area please contact me at Lymeaway77@gmail.com and I can give you further details. It’s not a big commitment if you do have an interest. 

August LymieMoms Social Event

Lymie Moms Unite Group 
LymieMoms Social Club of PA/NJ/DE

My Daughter and I at our Interview on FOX29 on Mother’s Day of this year in regards to our story with Lyme Disease and sharing details about my Mom’s Group💚💚💚

  Mother’s Day 2015 in the FOX29 Green room 

IMG_7060 At the FOX29 Studio right after our Interview “Taking a bite out of Lyme Disease” 

 

Tick Prevention! Please read and share to protect yourself and loved ones during Tick season!

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I’ve already received 4 messages from people just in this last week regarding Tick bites. PLEASE, PLEASE remember right now the nymph (babies) ticks are out!! So when you are outside whether you are hiking, playing in the yard, gardening, camping or even at a local park do a tick check when you come home. Here are some tips I would suggest too…these are cheap products that can help.

1. Wear some kind of hat
2. Wear light colored clothing so that you can see the ticks
3. Cover any or all exposed areas such as your ankles, arms, & legs. Ticks love the warmer spots like your Ears, armpits, groin, etc. I know it can be hot to wear long clothes in the spring/summer so if you prefer there are products that help protect from ticks such as…

A. Permethrin Spray, this is good through 6 washes of clothing-http://www.walmart.com/ip/21947774?wmlspartner=wlpa&selectedSellerId=0&adid=22222222227022234839&wl0=&wl1=g&wl2=c&wl3=40968437432&wl4=&wl5=pla&wl6=78911591192&veh=sem

B. Spray with DEET to apply to the skin- http://www.amazon.com/Deep-Woods-Sportsman-Insect-Repellent/dp/B000WOU414

C. Natural spray is also good for kids and if you don’t want the chemicals on your skin is- Repel Insect Spray

D. For your lawn there are many different things you can do. Remember ticks love the to hang by the edges of your yard and walking paths. They HATE the Sun but LOVE the shade so putting things like your kids swing set in the shade isn’t the best idea. Here are a few products to help- http://www.tickencounter.org/prevention/protect_your_yard

E. Don’t forget about your pets! Use a pet product on them to help prevent ticks as well. Remember to check them when they come inside and one of the best things I can tell you as well. Do not allow them to sleep in bed with you at night. I’ve had many people with stories of ticks transferring from their pets onto them- http://www.1800petmeds.com/Flea+++Tick+Prevention-cat50.html

F. When Hunting there is a Tick prevention suit and clothing you can wear. In fact my Father In-law uses one and says it works great!- http://www.cabelas.com/catalog/search.cmd?form_state=searchForm&N=0&fsch=true&Ntk=AllProducts&Ntt=Tick+prevention+clothes&x=10&y=6&WTz_l=Header%3BSearch-All+Products

Reputable Lyme Disease Info-

http://www.ilads.org
http://www.lymedisease.org/lyme101/ticks/about_ticks.html

Have a fun this Spring/Summer but please be safe! Share this post and if any questions feel free to contact me 

~Alison

Elaina sharing her story with Lyme on 20/20 tonight @10pm

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Watch tonight on ABC 20/20 Elaina’s story with Lyme Disease! A 16 yr old girl fighting Chronic Lyme and experiencing symptoms such as Seizures, Memory Loss and Speech Problems.

You’d never know it sitting across from 16-year-old Elaina that she suffers from a rare and debilitating case of Lyme disease. The spark-plug of a teen is bright, bubbly, and optimistic in the face of what she describes as a four-year nightmare.

Elaina’s Story

Watch videos of Elaina

TUNE IN TONIGHT AND CHECK YOUR LOCAL LISTINGS! ABC 20/20

Harrisburg Lyme Rally-Only 2 days away!!

Were getting closer! Only 2 days away from the Harrisburg Lyme Rally!!! We need you, the LYME YOUTH, YOUNG ADULTS, and their families to show your support for the Senate Bill 210. Wear your green! Bring your signs! There will be PRESS there and we need to see and hear the stories of our youth and how it’s impacting them. Our goal is to explain why this bill is needed so desperately. Check out LymeActionPA for the latest updates for Tuesday-5/24.

-Did you know Pennsylvania is #1 in reported cases in the U.S. and yet we have no prevention strategy, and were not even monitoring tick populations?

-Children are the most likely victims, ages 5-14 in particular. The impact on the brains and development of children can be very severe but can be improved if treated properly.

-Long term antibiotics work! They restore health and functionality. The cost of not treating us is much more significant then the potential risks of treatment.

– CDC says Lyme is a clinical diagnoses–based on signs and symptoms NOT the lab test alone. The lab test is widely known to be inadequate and a John’s Hopkins study from 2005,found it could miss as many as 75% of people who actually had the disease! A negative test can not rule out the disease, and yet physicians today are diagnosing based on “the old school” approach requiring a positive test no matter what.