Come join us at our next LymieMom’s Meeting! 3/20/16

Once again we will be trying to have another LymieMoms Social Lunch at Panera Bread. January’s meeting got canceled due to the Big Snow Storm so hopefully with Spring right around the corner we won’t have to reschedule this meeting too!

This meeting will be held in the same town and same place as originally planned, Quakertown, PA, at the Panera Bread. Come out for some great conversation, good food, support and make some new friendships too. All Moms with Lyme, Kids who have it, those expecting or trying to get pregnant, or just those Ladies who would like to join us to learn more. Grandmother’s who’s grandkids who have it are welcome as well. We just ask that you leave your children at home so that us Mom’s can focus on each other. I will be scheduling a Day with our kids to meet when the weather gets warmer.

This is the address where it will be held if you dont have a Facebook Page or Twitter Account which is where I usually update about these Monthly Meetings.

Address: Panera Bread, Quakertown PA

Official Panera Bread Website

You can find more updates here on Our Facebook Pages and Twitter

LymieMoms Social Group of PA/NJ/DE (Facebook)

LymieMomsUnite Support Group  (Facebook)

LymeAWAY! Page (Facebook)

LymeAWAY Twitter

 LymieMomsUnite Twitter 

 

Also, I’ve had many other Ladies and Mom’s sad that they can not make these Meetings because they are in another State and County. My hope for this group is to expand it into other States as well, however there is only one of me and I can not be in every state possible. What I’m asking is for anyone who has interest in becoming a “LymieMom Host” in your own town please contact me. There is not a lot of responsibility either if you are not completely 100% sure you can physically do this. Even if you find someone else in your area who would like to do it as well, you can have two people running it and switch off running the monthly meetings. I have no problem with that. So if you have any interest or know anyone who may have them contact me at my email Lymeaway77@gmail.com 

Thank you~Alison

January LymieMoms Social-1/24/16

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LymieMoms Social Group  had taken a hiatus the last several months, but we are back now to our meetings starting up again. I do hope you all had a happy and hopefully not too painful Holiday and were able to enjoy your time with your family and friends. My family and I were very busy running from one family party to the next, church service, and of course having family of our own over the holiday as well and celebrating the New Year too. Least to say as nice as it was this year, I’m glad its over. I’m exhausted and ready to get back to some normalcy and could definitely use my Ladies time with some of you beautiful Mamas!

Our newest meeting coming up will be on Sunday January 24, 2016 from 1:00-4:00pm at the Panera Bread in Quakertown, PA. If you have a Facebook page you can find updates here LymieMoms January Social These meetings are open to Mother’s who have Lyme, Mother’s whose children have Lyme Disease or newly diagnosed, those interested in learning more and speaking with others who have been through Pregnancy and Lyme Disease or want to start a family.  I understand myself because back in 2010 when my Husband and I talked about starting a family it was a tough choice and I found that the friendship and advice as well as hearing experiences from other Lyme Parents out there helped me to make a decision for us. Plus making new friends for me has been the bonus 🙂 As of now Children are not allowed to join our meetings only because our full attention will be on them, I apologize but come the warmer months I promise to have several events so that our kids may join in and meet each other.

A note as well…I currently am looking for LymeMom Social Leaders for your town and county. Sadly I can’t be everywhere each month and as of now I’ve only been able to have meetings in PA, my goal is in surrounding areas as well such as Delaware and New Jersey. If only there were two of me! Its not a huge responsibility so if you have any interest please contact me at Lymeaway77@gmail.com

Well, I hope to see some new faces at this meeting this month! Also, if there is snow that day please look for updates either on our Facebook Page LymieMoms Social Group or look here on my Blog for updates.

~Alison

Come out to our October LymieMoms Social Event! 10/11/15

1888484_10152390923879155_2053769405_n(1) As I’ve mentioned before on other posts. I started an online Support Group for Mom’s with Lyme Disease called Lymie Moms Unite, who’s kids are suffering from it, as well as for those who are pregnant or looking to start a family and in need of support and friendship. Many of the Mothers in my online Facebook group are young Mother’s who have sick kids and looking for answers and support. Others are there for information. We also have Veteran Lymie Moms who are there to help those who are now going though their own journey. Its amazing some of the friendships these women have made with each other already and even myself have. Im very big on a drama free and luckily we’ve never had that either. I’ve heard from some of the Moms telling me they feel safe in this group, which was the approach I wanted when I started this. A no judgement group where Mom’s can vent if needed, come together and also support one another without bashing one another for their own choices in their journey to have a family and the kind of treatment they do. I want to make it clear too because I’ve had others ask. This group is not just for the young Mother’s out there. We welcome Mother’s with grown children as well as Grandmother’s who may have a grandchild who as sick as well.

Recently, this past summer, I had an idea to get local Mom’s together each month, or every other to meet in person. That idea turned into the LymieMoms Social Group of PA/NJ/DE. We had our first meeting with 4 of us there at a Panera Bread in Montgomery County, PA. It turned out wonderful, we had lunch, shared our stories and advice with each other. I realized soon it very much something that was needed and was happy that I started it. The plan is to change locations every time which is what I’ve been doing so far and its turned out great! I only wish I could travel to each state and county meeting more Mother’s out there, but sadly I am unable to do that I am only one person and have a family of my own. My great hope is that we can do this wherever the Social part of LymieMoms is needed. Therefore I’m asking if any of you are interested in being a LymieMoms Host in your State and County please let me know by emailing me at lymeaway77@gmail.com The volunteer job does not come with a huge responsibility. You would just have to pick a place each month or every other to have lunch, dinner, or coffee then invite people. The key is to get together without spending too much money. There is no money that you have to put up front. Its just a matter of making a commitment to keep the group going. I also doing mind helping out with the invites if  needed through social media.

I do hope to see some of you local Ladies, Moms, soon to be, etc. in the PA area at our next meeting which is this Sunday, October 11th @1-3:30pm at the Wegmans Pub in King Of Prussia, PA. Please RSVP at the link below on Facebook and I hope to see you there!

Alison

LymieMoms Social Club of PA/NJ/DE (Link to Group)

OCTOBER LymieMoms Social Event 10/11/15 (RSVP Here)

Follow Us Here! LymieMomsUnite Instagram

Lymie Moms Unite (Facebook Online Support)

Tune in to the DR. PHIL Show this week to hear about stories of those with Lyme!

PLEASE tune in to your local cable network Friday, April 13, 2012 to watch Dr. Phil interview Brooke Landau Weather forecaster about Chronic Lyme! Brooke has been thoroughly active in the Lyme Community and has shared her experience in dealing with this illness and will now share it on the Dr. Phil show as well as several others.

ON THE DR. PHIL SHOW Deadly Consequences

Dr. Phil’s guests say they’re dealing with serious illnesses that could have deadly outcomes. First, Annette says as a mother, she wants the right to euthanize her severely-disabled children, 42-year-old Jeffrey and 43-year-old Janet, who have been institutionalized for more than three decades with the rare genetic disorder, Sanfilippo Syndrome. Her only legal option is to remove their feeding tubes, which she says would lead to a painful and inhumane death. What would you do? Hear from acclaimed trial attorney Geoffrey Fieger on why he thinks the laws against euthanasia should be changed. Then, former model Stephanie Vostry, 25, says that she suffers from constant pain and seizures caused by what some doctors believe to be chronic Lyme disease, and others wonder if she’s faking. With natural medicine providing minimal relief, hear how she says she’s turned to self-medicating to dull her pain. Plus, chronic Lyme disease hits close to home for a Dr. Phil staff member and a San Diego weathercaster.

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CNN 7/7/08 Lyme Disease Coverage!

10yrs of Pain Mandy Hughes

10yrs of Pain Mandy Hughes

JULY 7, 2008

For more than 10 years, Mandy Hughes drifted in an out of what she calls the horrible, debilitating pain of Lyme disease

“It literally feels like you got into a severe accident, like you were hit by a Mack truck and you were allowed no medical attention,” she says.

After being bitten by a tick at 19, Hughes broke out in hives and suffered fever and chills so severe that she had to be hospitalized. She was diagnosed with Lyme disease and was sent home with two weeks’ worth of the antibiotic tetracycline. She seemed to be cured.

But over the years, the Lyme symptoms flared back — crippling joint pain, muscle spasms, headaches and facial paralysis. She visited 15 doctors, yet they were unable to arrive at a diagnosis. Several thought she had multiple sclerosis. Others knew she was sick but didn’t know why. Lyme had been ruled out.

“Maybe it’s psychological — we don’t really have an explanation,” they told Hughes. “Your tests are coming back fine, Mandy.” 

For the rest of this story click on link below (where it says Filed Under)

 

Better Days to Come

Well, I haven’t posted anything for a while. I had a rough week or so since I last updated you all.  My Herxing was out of control, then I started up with major nausea and stomach pain. I think I drank a ton of Aloe in those few days of pain for the belly..lol. I was given a prescription which I wasn’t thrilled about since I try to do as much as I can alternative.  My doctor said a week ago that all of this herxing is a good sign and that even if I’m getting an hr out of my day out of my bed and talking or trying to walk around is a good sign. She said we will not need to higher my IV meds, which I’m very happy about! She wants to keep an eye on my stomach pain though, she’s also ran blood work this past Tuesday because I’m showing signs of being Anemic, which is something I’ve always struggled with my LYME. Good news is she thinks it may be only a couple more weeks until my pic-line is approved, YEAH!

MY BEST DAY YET…This past Sunday, Fathers Day, was the first day I can say so far since treatment that I had a good 5 hrs of being for the most part pain-free and speaking more than a couple sentences without feeling like no one could understand. My family jokes about that..if I’m not making sense they say Alison…just STOP..and we all laugh, cause litterly I’m talking like I’m drunk. Anyway,  I was so excited that by 2pm I took a shower, got dressed, and even put makeup on (oh my!) I haven’t done that in awhile..its amazing how good you feel ladies just by doing that! My hubby was pretty happy too, he said he hasn’t seen my legs in while, hence I’ve been trutt’n around the house lately in sweats or my PJ’s looking like a housewife gone wrong. Now most of you who know me, know I wouldn’t even go out of the house or be seen without makeup, even at places like Wal-Mart, yes I’m a princess which is why I do skincare and makeup in my company. Unfortunately, these days I haven’t much cared. Sunday was different..I hadn’t done anything what you would call remotely normal in weeks.  We went to visit my In-laws Al and Kitty for Father’s Day. Kitty has been recovering from a multitude of surgeries and a 21 day hospital stay in the ICU. Yes, we’ve had a rough month of illness in my family, talk about stress. In fact a couple rough months for my Dad as well, he’s had two eye surgeries for a detached retina and one more still coming up soon.

Kitty is doing well and it was so nice to see her and Al, we spent about an hr there enjoyed some family time and played with her cats Danny and Cinders. We also went to the store to get me a new cell phone. I was so excited, mine has not been looking too shabby lately. Unfortunately we couldn’t buy one that day still working out some kinks with transferring my account with my hubby’s. Then the Hubby had his late-afternoon munchies so we stopped at ‘Panara Bread’, they have amazing food there!  I asked him if to order me a  fruit smoothie, yum!  They have the best there! I highly advise getting one sometime, their all natural, nothing added like sugars or juice, since that’s what my diet consists of. As we left I’m litterly skipping to my car with my drink in my hand..yeah.. skipping like a  little school girl. Nooo cane TODAY!! Lol..I got in the car and I said to my Husband..‘Wow I really miss days like this, ya know just simple ones..running errands spending time with you, laughing at your jokes (or rolling my eyes at his jokes).’  I told him it felt like my BIRTHDAY, he just laughed and said ‘Really.. days with me driving you crazy, you miss this?? He said, you sure your feeling ok today?? He said ..we better go home, lol.’  Normally my husband has gotten to the point where he makes his routine jokes and remarks and I pretend to laugh, I call him my ‘Will Farrow’, except that he needs new material. That day I laughed a lot, and it felt good!

Unfortunetly, on the way home in the car I felt the fatigue and joint pain settle in and my head felt like a had a water balloon inside, however no ways of popping it though..aww nuts!  By the time I got home everyone was sitting down to dinner. I retrieved to the couch with my sunglasses on, my heating pad,  and the essentials I needed to take my nap.  I was sad that I had to miss out on Father’s Day Dinner, wish the couple good hrs would of lasted longer with my Dad and family that night, but I can’t complain it was a good day and I knew my Dad understood.  My mom came over and hugged me before I finally passed out with that look of sadness on her face, and said ‘Were you at least able to have a good time at Kitty and Al’s with Brian?’  ‘ I said yeah, it felt like MY BIRTHDAY today!She and I laughed, then she said ‘Hunny that’s so sad… I told her yeah I know Mom, but there will be more days like this, you just have to have faith.’

IN GOD WE TRUST THAT HE WILL LEAD US TO THE RIGHT PATH..