Save The Date! PA Patient Conference

I’m happy to announce after some time of discussion and planning, the PA Lyme Disease Resource Network will be having their first Annual Lyme Disease Patient Conference this May 14th 2016 in Lancaster, PA.

This is wonderful news for Lyme Patients everywhere! You can find future details on the PA LYME DISEASE NETWORK  Website and also look for more announcements on my Blog, Facebook Pages for LymeAWAY and LymieMoms Unite, as well my Twitter accounts @Lymeaway77 and @LymieMoms

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Come out to our October LymieMoms Social Event! 10/11/15

1888484_10152390923879155_2053769405_n(1) As I’ve mentioned before on other posts. I started an online Support Group for Mom’s with Lyme Disease called Lymie Moms Unite, who’s kids are suffering from it, as well as for those who are pregnant or looking to start a family and in need of support and friendship. Many of the Mothers in my online Facebook group are young Mother’s who have sick kids and looking for answers and support. Others are there for information. We also have Veteran Lymie Moms who are there to help those who are now going though their own journey. Its amazing some of the friendships these women have made with each other already and even myself have. Im very big on a drama free and luckily we’ve never had that either. I’ve heard from some of the Moms telling me they feel safe in this group, which was the approach I wanted when I started this. A no judgement group where Mom’s can vent if needed, come together and also support one another without bashing one another for their own choices in their journey to have a family and the kind of treatment they do. I want to make it clear too because I’ve had others ask. This group is not just for the young Mother’s out there. We welcome Mother’s with grown children as well as Grandmother’s who may have a grandchild who as sick as well.

Recently, this past summer, I had an idea to get local Mom’s together each month, or every other to meet in person. That idea turned into the LymieMoms Social Group of PA/NJ/DE. We had our first meeting with 4 of us there at a Panera Bread in Montgomery County, PA. It turned out wonderful, we had lunch, shared our stories and advice with each other. I realized soon it very much something that was needed and was happy that I started it. The plan is to change locations every time which is what I’ve been doing so far and its turned out great! I only wish I could travel to each state and county meeting more Mother’s out there, but sadly I am unable to do that I am only one person and have a family of my own. My great hope is that we can do this wherever the Social part of LymieMoms is needed. Therefore I’m asking if any of you are interested in being a LymieMoms Host in your State and County please let me know by emailing me at lymeaway77@gmail.com The volunteer job does not come with a huge responsibility. You would just have to pick a place each month or every other to have lunch, dinner, or coffee then invite people. The key is to get together without spending too much money. There is no money that you have to put up front. Its just a matter of making a commitment to keep the group going. I also doing mind helping out with the invites if  needed through social media.

I do hope to see some of you local Ladies, Moms, soon to be, etc. in the PA area at our next meeting which is this Sunday, October 11th @1-3:30pm at the Wegmans Pub in King Of Prussia, PA. Please RSVP at the link below on Facebook and I hope to see you there!

Alison

LymieMoms Social Club of PA/NJ/DE (Link to Group)

OCTOBER LymieMoms Social Event 10/11/15 (RSVP Here)

Follow Us Here! LymieMomsUnite Instagram

Lymie Moms Unite (Facebook Online Support)

Come out for our 2012 Lyme Light Fashion Show May 5th!

Come out on May 5th 2012 for a Fashion Show centered around Lyme Disease in Youth! Hosted by Montgomery County Community College. Modeled by Youth affected by Lyme Disease and also professional models. Come hear the stories of these kids and  how much it has changed their lives. Lyme Disease is not what you think!!

See Designs by Tommy Hilfiger‘s daughter Alexandria Hilfiger, Old Navy, Bannana Republic and many more!

All proceeds will go towards MontCoLyme a 501 (c)(3) Organization

Lyme Light Fashion Show

Lyme Light Fashion Show 2012-Megan Harrison’s Story

4/30/11-Julia Wagner to speak at Lyme Awareness Event

If you can PLEASE come out and support our friend Dawn DiFiore!!! Dawn DiFiore

To be held at Jeffersonville Golf Club, West Norriton, PA,  April 30th, 7-11pm,$35 (tickets sold at the door) Includes food, drinks, entertainment, and lots of Lyme Disease information from our very own Julia Wagner, president of MontCoLyme.

More info and article from The Times Herald: Lyme Disease Fundraiser

Dates for Upcoming Speakers for MontCo Lyme

Julia Wagner will have a full resource table with high quality informational and educational resources available, along with participants in the meeting experienced personally with Tick-Borne diseases.
 
All meetings are the last Monday of the month: at 7pm, and held at St. Peter’s Lutheran church, 211 Main Street, North Wales, PA  19454.
 
Feb 28, 2011Speaker:  David S. Thalheimer, JD – David has represented hundreds of parents and children in special education matters in Pennsylvania. Prior to establishing Thalheimer and Palumbo, he served for five years as an Assistant District Attorney in Philadelphia. Before serving at the District Attorney’s office, he was a litigation associate in the Philadelphia office of the Dechert law firm. He has often lectured on special education issues to educators and parents. His J.D. degree is from the Georgetown University Law Center, where he was an Editor of the Law Journal. His undergraduate degree is a B.A. in Economics from the University of Pennsylvania. Mr. Thalheimer is past President of the Advocacy Board of the Arc of Montgomery County. David has helped some families with children stricken with Lyme Disease with their education and schooling challenges. Julia Wagner will provide an introduction regarding the impact of Lyme on youth and children, and then David Thalheimer , attorney, will address working with the schools regarding educational accommodations for children/youth with Lyme. 
 
March 28, 2011Speaker – Dr. Clarence Mast, MD – Dr. Mast is Board-certified in Family Practice, and in recent years introduced through personal family experience to Lyme and Tick-Borne Diseases.  He is a member of ILADS and particularly concerned about the impact of Tick-Borne Diseases on Children & Youth.
 
April 25, 2011Speaker – Ron Hamlen, PHD – Ron Hamlen is a PHD in Insect Pathology, Nematology and Microbial Insect Control, also receiving certificates from Harvard School of Public Health in Public Health Risk Assessment.  He is currently Vice President and Science Advisor for the Lyme Disease Association of Southeastern PA (LymePA) and a member of ILADS.  Ron has a special interest in prevention of tick-borne disease, and the impact of tick-borne diseases on children and youth.  He has authored numerous articles, most recently a Chapter in a textbook: “Pediatrics in the Schools: Disorders and Treatment” published by the National Association of School Psychologists and Corwin/Sage Publishers, on Lyme and Associated Tick-Borne Infections”.
 
See www.lymeactionpa.com, and click on the Montcolyme tab for additional information (this site is in the midst of being updated for now, and this information is not yet there, but will be by the end of the year).
 
Julia F. Wagner is President of MontCoLyme (Montgomery County (PA) Lyme Information and Support Group)
She may be contacted at  MontCoLyme@aol.com
MontCoLyme Address – 211 Main Street, North Wales, PA  19454
866-MCo-LYME (866-626-5963)

“Under Our Skin” Viewing-4/18/11

LYME DISEASE

Special Screening of the Award-winning documentary film

UNDER OUR SKIN

A gripping tale of microbes, medicine and money. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are “all in your head”

HOSTED BY PENNSYLVANIA STATE SENATOR

ANDY DINNIMAN

and the

PENNSYLVANIA LYME DISEASE AWARENESS COMMITTEE

WEST CHESTER UNIVERSITY, SYKES STUDEN UNION, 110 ROSEDALE AVENUE, WEST CHESTER, PA

(FREE and Open to all-Free Parking)

MONDAY, APRIL 18, 2011 @7:00PM

Pennsylvania has the highest number of Lyme cases in the U.S.

Q&A after the movie: DOUG FEARN, President, Lyme Disease Association of Southeastern Pennsylvania, Inc.

For info, phone 610-384-2249

www.lymepa.org

 

Dont Forget!! UOS Screening on 1/30 @4pm

The Colonial Theater, Phoenixville, PA

Image via Wikipedia

If you have nothing to do tomorrow and want to see a great film come out to the Colonial Theatre and see the gripping documentary ”Under Our Skin”. I got invited to be a guest speaker, come out and meet me!

Hope to see you there!

Check it out!!