Harrisburg Lyme Rally-Only 2 days away!!

Were getting closer! Only 2 days away from the Harrisburg Lyme Rally!!! We need you, the LYME YOUTH, YOUNG ADULTS, and their families to show your support for the Senate Bill 210. Wear your green! Bring your signs! There will be PRESS there and we need to see and hear the stories of our youth and how it’s impacting them. Our goal is to explain why this bill is needed so desperately. Check out LymeActionPA for the latest updates for Tuesday-5/24.

-Did you know Pennsylvania is #1 in reported cases in the U.S. and yet we have no prevention strategy, and were not even monitoring tick populations?

-Children are the most likely victims, ages 5-14 in particular. The impact on the brains and development of children can be very severe but can be improved if treated properly.

-Long term antibiotics work! They restore health and functionality. The cost of not treating us is much more significant then the potential risks of treatment.

– CDC says Lyme is a clinical diagnoses–based on signs and symptoms NOT the lab test alone. The lab test is widely known to be inadequate and a John’s Hopkins study from 2005,found it could miss as many as 75% of people who actually had the disease! A negative test can not rule out the disease, and yet physicians today are diagnosing based on “the old school” approach requiring a positive test no matter what.

Lyme Lite Fashion Show Fundraiser!! Come join!

Lyme Lite Flyer

Press Release

Keystone Fellowship Church, North Wales, PA @4pm, May 8th

Lyme Disease Events in PA

May 16th: North Wales Day from 10-2pm, St. Peter’s Evangelical Lutheran Church
211 Main St., North Wales, PA 19454 We will be handing out information on Lyme Disease and answering any questions you might have.

May 17th, 3:30pm — Under Our Skin and Q&A at The Ambler Theater, 108 East Butler Avenue, Ambler, PA http://www.amblertheater.org Q&A with Guest Speakers: Dr. Ann Corson, MD, Douglas Fearn, President LDA-SEPA, and possible guest politician. Dr. Corson is one of the few family physicians treating children with Lyme; she will be able to share her experiences with treating the children affected by Lyme. Many Lyme kids are mis-diagnosed with ADD/ADHD, Autistic Spectrum, Rheumotoid Arthritis, Parkinson’s, Chronic Fatigue and numerous other ailments, and treated symptomatically without addressing the underlying causes, and left to deteriorate. If you, or anyone you know, has a child affected by learning disabilities, dyslexia, ADD, autistic spectrum or other neuropsychiatric/cognitive issues, come to this special forum to learn about the “many faces of Lyme disease”. This will be the LAST FREE Community screening of Under Our Skin in the Greater Philadelphia Area. This film has been picked up for commercial release, and the Philadelphia marketplace is a target market; therefore all free screenings have been put on hold until future notice. All details are below.

This screening is co-hosted by MontCoLyme and the Ford Family. The Ford family has an 8-year old son who has been severely affected by Lyme disease. He is now under the care of Dr. Ray Jones who is featured in this film. Under Dr. Jones’ care and treatment for Lyme disease, their son has steadily improved. We are especially pleased to have with us for the Q&A, Dr. Ann Corson, MD, one of very few Lyme-literate Board-Certified Family Practice physicians treating children. Additional panelists include: Douglas Fearn, President of the Lyme Disease Association of Southeastern PA, and tentatively PA Representative Josh Shapiro. There will be lots of informational materials and resources available at the screening as well. For more information on the film, see http://www.underourskin.com, and regarding Lyme disease, see http://www.ilads.org, http://www.lymepa.org, or http://www.lymedisease.org. See you there!