Come join us at our next LymieMom’s Meeting! 3/20/16

Once again we will be trying to have another LymieMoms Social Lunch at Panera Bread. January’s meeting got canceled due to the Big Snow Storm so hopefully with Spring right around the corner we won’t have to reschedule this meeting too!

This meeting will be held in the same town and same place as originally planned, Quakertown, PA, at the Panera Bread. Come out for some great conversation, good food, support and make some new friendships too. All Moms with Lyme, Kids who have it, those expecting or trying to get pregnant, or just those Ladies who would like to join us to learn more. Grandmother’s who’s grandkids who have it are welcome as well. We just ask that you leave your children at home so that us Mom’s can focus on each other. I will be scheduling a Day with our kids to meet when the weather gets warmer.

This is the address where it will be held if you dont have a Facebook Page or Twitter Account which is where I usually update about these Monthly Meetings.

Address: Panera Bread, Quakertown PA

Official Panera Bread Website

You can find more updates here on Our Facebook Pages and Twitter

LymieMoms Social Group of PA/NJ/DE (Facebook)

LymieMomsUnite Support Group  (Facebook)

LymeAWAY! Page (Facebook)

LymeAWAY Twitter

 LymieMomsUnite Twitter 

 

Also, I’ve had many other Ladies and Mom’s sad that they can not make these Meetings because they are in another State and County. My hope for this group is to expand it into other States as well, however there is only one of me and I can not be in every state possible. What I’m asking is for anyone who has interest in becoming a “LymieMom Host” in your own town please contact me. There is not a lot of responsibility either if you are not completely 100% sure you can physically do this. Even if you find someone else in your area who would like to do it as well, you can have two people running it and switch off running the monthly meetings. I have no problem with that. So if you have any interest or know anyone who may have them contact me at my email Lymeaway77@gmail.com 

Thank you~Alison

Save The Date! PA Patient Conference

I’m happy to announce after some time of discussion and planning, the PA Lyme Disease Resource Network will be having their first Annual Lyme Disease Patient Conference this May 14th 2016 in Lancaster, PA.

This is wonderful news for Lyme Patients everywhere! You can find future details on the PA LYME DISEASE NETWORK  Website and also look for more announcements on my Blog, Facebook Pages for LymeAWAY and LymieMoms Unite, as well my Twitter accounts @Lymeaway77 and @LymieMoms

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**LymieMom Meeting CANCELED** 1/24/16 

 ❄️☃❄️☃❄️☃❄️☃❄️☃❄️☃❄️

        

Sadly due to the Blizzard of 2016 this past weekend I will be CANCELING our meeting today in Quakertown, PA at Panera Bread. We have a long driveway and sadly our plow guy to get us out won’t be here in time. Plus with the almost 30 inches we got in my area I would prefer none of us take the chance of being on the roads and getting hurt since I know most of this region got hit hard.

I will most likely be rescheduling for March sometime. Only because my February Weekends are already booked up with Birthdays and other Social Events. If anything changes though and I’m able to schedule something for February I will update you all. You can find the links to our Group Here on Facebook⬇️

LymieMoms January Meeting-CANCELED
LymieMom Social Group-UPDATES
LymieMom-SUPPORT GROUP

Have a wonderful rest of the weekend being snowed in and stay safe Ladies & Mama Friends!
~Alison 

Come out to our October LymieMoms Social Event! 10/11/15

1888484_10152390923879155_2053769405_n(1) As I’ve mentioned before on other posts. I started an online Support Group for Mom’s with Lyme Disease called Lymie Moms Unite, who’s kids are suffering from it, as well as for those who are pregnant or looking to start a family and in need of support and friendship. Many of the Mothers in my online Facebook group are young Mother’s who have sick kids and looking for answers and support. Others are there for information. We also have Veteran Lymie Moms who are there to help those who are now going though their own journey. Its amazing some of the friendships these women have made with each other already and even myself have. Im very big on a drama free and luckily we’ve never had that either. I’ve heard from some of the Moms telling me they feel safe in this group, which was the approach I wanted when I started this. A no judgement group where Mom’s can vent if needed, come together and also support one another without bashing one another for their own choices in their journey to have a family and the kind of treatment they do. I want to make it clear too because I’ve had others ask. This group is not just for the young Mother’s out there. We welcome Mother’s with grown children as well as Grandmother’s who may have a grandchild who as sick as well.

Recently, this past summer, I had an idea to get local Mom’s together each month, or every other to meet in person. That idea turned into the LymieMoms Social Group of PA/NJ/DE. We had our first meeting with 4 of us there at a Panera Bread in Montgomery County, PA. It turned out wonderful, we had lunch, shared our stories and advice with each other. I realized soon it very much something that was needed and was happy that I started it. The plan is to change locations every time which is what I’ve been doing so far and its turned out great! I only wish I could travel to each state and county meeting more Mother’s out there, but sadly I am unable to do that I am only one person and have a family of my own. My great hope is that we can do this wherever the Social part of LymieMoms is needed. Therefore I’m asking if any of you are interested in being a LymieMoms Host in your State and County please let me know by emailing me at lymeaway77@gmail.com The volunteer job does not come with a huge responsibility. You would just have to pick a place each month or every other to have lunch, dinner, or coffee then invite people. The key is to get together without spending too much money. There is no money that you have to put up front. Its just a matter of making a commitment to keep the group going. I also doing mind helping out with the invites if  needed through social media.

I do hope to see some of you local Ladies, Moms, soon to be, etc. in the PA area at our next meeting which is this Sunday, October 11th @1-3:30pm at the Wegmans Pub in King Of Prussia, PA. Please RSVP at the link below on Facebook and I hope to see you there!

Alison

LymieMoms Social Club of PA/NJ/DE (Link to Group)

OCTOBER LymieMoms Social Event 10/11/15 (RSVP Here)

Follow Us Here! LymieMomsUnite Instagram

Lymie Moms Unite (Facebook Online Support)

August LymieMom Meeting **CANCELED**

I apologize for the inconvenience, but due to the lack of people officially attending this Month’s Moms get together in King Of Prussia, PA, tomorrow the 23rd of August, I am going to have to CANCEL.  

I think since the last two meetings have not been the best with the amount of Women being able to attend I am going to try to do this every other month instead. We’ll see if we get a better a turn out that way. I know it’s hard in the summer too with families vacationing and such as well so maybe in the Fall it will be easier for everyone. 
I will still be having one in September and then another in November. Dates will be announced soon and it will still be at the same place as this months was supposed to be, Wegman’s Pub, King Of Prussia, PA. Just continue to look for my announcements on here and in our main LymieMoms Social Club Page or in our LymieMoms Support Group Page. Links are below. 
Thank you for understanding everyone and have a wonderful week ahead!💚💚💚


Alison P. 

Lymie Moms Unite Adminstrator 
LymieMoms Social Club of PA/NJ/DE
Lymie Moms Unite Support Page

LymieMoms August Social Event 

 ***THIS EVENT IS CANCELED***

See Blog Post: August LymieMom Meeting Canceled 

 Come this Sunday, August 23rd @1pm in King Of Prussia, PA at the Wegman’s Pub. I will be hosting our 3rd Event for my Lymie Moms Unite Group that is on Facebook. I started the main group shortly after my Daughter got diagnosed with Lyme Disease at just 14 weeks old. This Summer I decided to expand it into a Social atmosphere for Moms to get together, build friendships, and support one another as well as share their experiences on what it’s like to not only deal with a Chronic Illness like this themselves, but raise a child who is suffering as well. I also found I had many others Mother’s contacting me about starting a family after they heard about our Surrogacy Journey in 2011 which created our now 3 yr old Daughter Hannah. 

The Group has become a wonderful outlet for Mother’s looking for support as well as those wanting to start a family while still in treatment for Chronic Lyme Disease or just regaining remission. 

My Group is open to any Mother’s battling the illness, children whom have it, those wanting to start a family and are already pregnant and looking for advice. This group has not only been a learning experience for myself, but I’ve made many wonderful friendships with other Mom Warriors. I do hope to see some of you in the Group as well as at our upcoming Social Events! 

As of now our meetings are being held at a different location each month in the Surrounding Pennsylvania, New Jersey, and Delaware Areas. I am looking to expand into other counties and states though. If you have any interest in becoming a Lymie Mom Host in your area please contact me at Lymeaway77@gmail.com and I can give you further details. It’s not a big commitment if you do have an interest. 

August LymieMoms Social Event

Lymie Moms Unite Group 
LymieMoms Social Club of PA/NJ/DE

My Daughter and I at our Interview on FOX29 on Mother’s Day of this year in regards to our story with Lyme Disease and sharing details about my Mom’s Group💚💚💚

  Mother’s Day 2015 in the FOX29 Green room 

IMG_7060 At the FOX29 Studio right after our Interview “Taking a bite out of Lyme Disease” 

 

Lyme Panel Discussion- 7/27/15 @7pm North Wales, PA 

 

I will be a guest speaker again along with several other Lyme speakers talking about my journey and my Daughter’s with Lyme Disease tonight in North Wales, PA. Come out and listen to what others have done for treatment, what has worked what hasn’t and learn more to help you through your own experience with this illness! Hope to see you there. 
This is the info and link to this local Support Group run by Lee Gordon https://www.facebook.com/groups/PALRNMontgomeryCounty/

House Bill 272 Hearing coming up!! Lymies needed- 8/30/2011

We are asking all of you who have Lyme and reside in Pennsylvania to be the voice so that we can finally get HB 272 passed!! If you can not make it you can still email your story or send written testimony to be heard. Check for details at Lyme Action PA Thank you!!

(Via Julia F. Wagner-President of MontCoLyme Support Group)

The PA House is going to hold a hearing on House bill 272 on Tuesday, Aug 30th, in Harrisburg from 10am until 12 noon. We hope you can be there!

There is new energy on this bill, and this hearing is critical–the bill has been around the house so long, and passed 3 times. Thats why it is crucial to hear your stories! Dr. Robert Bransfield, ILADS president, and distinguised fellow of the APA, and President of APA New Jersey will be speaking. We have several surprise speakers as well and patients speaking with their own stories and will be asking for an open mike for patients to share comments at the end.

Please, please do what you can to pass the word on regarding this hearing if you can not attend. Check Lyme Action PA and our facebook page for updates over the next couple days.

Thank you…progress IS being made to so many of you who are reaching out, finding the patients, getting them involved, please keep in touch, and let us know you are out there, and in the fight to change things for Lyme patients in PA!!

Julia Wagner, Chair, LymeActionPA

**If you want to get more actively involved, email lymeactionpa@gmail.com and we’ll connect you with your local regional LymeActionPA coalition leader.

****HB 272 Bill is The Lyme and Related Tick-Borne Disease Education, Prevention and Treatment Act.

This legislation directs the Department of Health to establish a task force to address the issues surrounding Lyme disease and other tick borne infections. The task force is directed to investigate and make recommendations to the Department regarding the prevention of Lyme disease in the Commonwealth. The Department of Health is also directed to develop a program of public and professional education on Lyme disease in order to raise awareness of the long term effects of misdiagnoses and to develop public information and education on Lyme disease.

In addition, HB 272 further provides that a physician may prescribe long-term antibiotic therapy for late stage Lyme disease. The bill requires all health care insurance policies must cover treatment for Lyme disease, including long term therapies, when prescribed by the treating physician.

Harrisburg Lyme Rally-Only 2 days away!!

Were getting closer! Only 2 days away from the Harrisburg Lyme Rally!!! We need you, the LYME YOUTH, YOUNG ADULTS, and their families to show your support for the Senate Bill 210. Wear your green! Bring your signs! There will be PRESS there and we need to see and hear the stories of our youth and how it’s impacting them. Our goal is to explain why this bill is needed so desperately. Check out LymeActionPA for the latest updates for Tuesday-5/24.

-Did you know Pennsylvania is #1 in reported cases in the U.S. and yet we have no prevention strategy, and were not even monitoring tick populations?

-Children are the most likely victims, ages 5-14 in particular. The impact on the brains and development of children can be very severe but can be improved if treated properly.

-Long term antibiotics work! They restore health and functionality. The cost of not treating us is much more significant then the potential risks of treatment.

– CDC says Lyme is a clinical diagnoses–based on signs and symptoms NOT the lab test alone. The lab test is widely known to be inadequate and a John’s Hopkins study from 2005,found it could miss as many as 75% of people who actually had the disease! A negative test can not rule out the disease, and yet physicians today are diagnosing based on “the old school” approach requiring a positive test no matter what.

“Under Our Skin” Viewing-4/18/11

LYME DISEASE

Special Screening of the Award-winning documentary film

UNDER OUR SKIN

A gripping tale of microbes, medicine and money. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are “all in your head”

HOSTED BY PENNSYLVANIA STATE SENATOR

ANDY DINNIMAN

and the

PENNSYLVANIA LYME DISEASE AWARENESS COMMITTEE

WEST CHESTER UNIVERSITY, SYKES STUDEN UNION, 110 ROSEDALE AVENUE, WEST CHESTER, PA

(FREE and Open to all-Free Parking)

MONDAY, APRIL 18, 2011 @7:00PM

Pennsylvania has the highest number of Lyme cases in the U.S.

Q&A after the movie: DOUG FEARN, President, Lyme Disease Association of Southeastern Pennsylvania, Inc.

For info, phone 610-384-2249

www.lymepa.org