Come join us at our next LymieMom’s Meeting! 3/20/16

Once again we will be trying to have another LymieMoms Social Lunch at Panera Bread. January’s meeting got canceled due to the Big Snow Storm so hopefully with Spring right around the corner we won’t have to reschedule this meeting too!

This meeting will be held in the same town and same place as originally planned, Quakertown, PA, at the Panera Bread. Come out for some great conversation, good food, support and make some new friendships too. All Moms with Lyme, Kids who have it, those expecting or trying to get pregnant, or just those Ladies who would like to join us to learn more. Grandmother’s who’s grandkids who have it are welcome as well. We just ask that you leave your children at home so that us Mom’s can focus on each other. I will be scheduling a Day with our kids to meet when the weather gets warmer.

This is the address where it will be held if you dont have a Facebook Page or Twitter Account which is where I usually update about these Monthly Meetings.

Address: Panera Bread, Quakertown PA

Official Panera Bread Website

You can find more updates here on Our Facebook Pages and Twitter

LymieMoms Social Group of PA/NJ/DE (Facebook)

LymieMomsUnite Support Group  (Facebook)

LymeAWAY! Page (Facebook)

LymeAWAY Twitter

 LymieMomsUnite Twitter 

 

Also, I’ve had many other Ladies and Mom’s sad that they can not make these Meetings because they are in another State and County. My hope for this group is to expand it into other States as well, however there is only one of me and I can not be in every state possible. What I’m asking is for anyone who has interest in becoming a “LymieMom Host” in your own town please contact me. There is not a lot of responsibility either if you are not completely 100% sure you can physically do this. Even if you find someone else in your area who would like to do it as well, you can have two people running it and switch off running the monthly meetings. I have no problem with that. So if you have any interest or know anyone who may have them contact me at my email Lymeaway77@gmail.com 

Thank you~Alison

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My Lyme Interview this Mother’s Day! 5/10/15 

  I’m Not Superwoman, but I’m Fighting Lyme Disease, So Close Enough” 

This Sunday, on Mother’s Day 2015, in early morning after 8am. I’ll be sharing my 30 year battle with Lyme Disease on Fox 29 Philly News and with so many other Lyme Patients out there who are fighting this. I feel so honored to have this voice to help those who may not know what is wrong with their children or their own health. My parents were not so lucky. They fought hard for 15 years to find out what was wrong with me, shut down by Doctor after Doctor and fighting with my Teachers and Schools too. 

I hope to inspire other Mom’s out there to never give up no matter how many times you may fall down. I am still fighting the battle and have come pretty far. With two relapses since March 2004 due to a number of things I was unable to prevent. I even had to deal with the diagnosis of my beautiful 3 year old daughter at just 14 weeks old in February 2012, born via Surrogate. I’ll be sharing her story too as well as talking about the projects I’ve worked on since for Mom’s out there to get the support they need. 

I was dealt this hand at a young age, but have truly believed after getting through some very dark times that this is the reason I was chosen this path. Yes, I could of went to college, had a job and maybe even a dancing career like I always dreamed of. However, if I did I probably wouldn’t of met the love of my life. Had a sensitivity towards others, a passion for living life to the fullest, or been given so many blessings and met so many other beautiful Lyme Warriors along the way. I know compared to many “Healthy” people, to never take a good day for granted. That doing things like being able to cook dinner for my family, go to the grocery store and run errands, give my daughter a bath or play outside with her means so much because to a Mom with Lyme those days are far and few between.

I’m so appreciative of everything God has given to me. Especially my family! They have sacrificed so much and have been effected emotionally and financially due to my illness. I hope on Sunday I can give more Parents out there hope and those just diagnosed to keep fighting and never give up! One day we’ll get the respect this illness so rightfully deserves from Doctors, the IDSA, and others. It’s getting better…I can feel it and see it everywhere around me. I pray it continues even if it’s one step at a time.    

Me speaking at the Capitol for the Lyme Bill, my Wonderful and Supportive Parent’s John & Roxanne and my Daughter Hannah as a baby

(left to right) Protesting with my Sister Jessica, myself, friend Dawn and fellow Lyme Warrior Morgan. 

My Husband Brian and Daughter Hannah Marie❤️

Columbia University Lyme & Tick Borne Disease Conference-In Philly, 10/2-10/3

Columbia University Lyme and Tick Borne Disease Research Center Annual Conference – IN PHILADELPHIA THIS YEAR – hosted by LDA on 10/2 – 10/3

10/2/10-10/3/10 Lyme Disease Conference